Simon John is a 18-year-old South Sudanese by with albinism from Yambio, South Sudan.
His father and mother died during the war, so he had to take care of himself. He works in construction. "I have to work in the hot sun all day long, but I have no choice because I have yo pay for my food, my school fee and my rent, he says." His delicate skin is badly damaged from the sun and is prone to infections and diseases if not taken care of.
 
Albinism is an inherited genetic condition that reduces the production of melanin pigment in skin, eyes and hair.